I took Claire for her physical yesterday and so far, so good. Her first batch of bloodwork came back negative and the doctor seemed to think that she would only be in the orthodics for a year and by the time she got to school, no one would ever suspect that she had a problem. She also told me to hold off on the MRI for a few months, because she didn't think it was going to be necessary. All around, it was a very encouraging appointment with nothing but good news. :)
As the days go by, it is becoming increasingly difficult for Claire to be so big yet still crawling. When we are at the playground, she gets annoyed and uncomfortable crawling thru the mulch and reaches for me to take her hand and says, " I walk. I walk." Yup..breaks my heart just a little bit. She also gets frustrated when she is crawling along the equipment to get to the slide and the other kids run past her, getting there first. She screams "STOP" at the top of her lungs, trying to get them to come back and let her go ahead. If nothing else, it's a good lesson in patience. Yesterday, I was in my bathroom getting ready and I could hear Claire across the house saying, "mom...i want some" over and over again. When she finally got to me, I realized that she had crawled all the way across the house dragging a loaf of bread next to her to come and tell me that she wanted a peanut butter sandwich. There is something so cute, funny and sad about seeing a child who is big enough to go into the pantry, get a loaf of bread and ask for a sandwich, all while crawling on her hands and knees. :(
On a more positive note, she has made huge progress in the past week in her "super shoes". She's standing pretty steadily on her own and braves a few steps here and there. That alone is encouragement to me that with a little bit of physical therapy and these braces on her legs, she will be up and at it in no time. I'm still waiting for the results from the last batch of bloodwork and genetic testing, but I am prayerful and confident that the results will be good!
As the days go by, it is becoming increasingly difficult for Claire to be so big yet still crawling. When we are at the playground, she gets annoyed and uncomfortable crawling thru the mulch and reaches for me to take her hand and says, " I walk. I walk." Yup..breaks my heart just a little bit. She also gets frustrated when she is crawling along the equipment to get to the slide and the other kids run past her, getting there first. She screams "STOP" at the top of her lungs, trying to get them to come back and let her go ahead. If nothing else, it's a good lesson in patience. Yesterday, I was in my bathroom getting ready and I could hear Claire across the house saying, "mom...i want some" over and over again. When she finally got to me, I realized that she had crawled all the way across the house dragging a loaf of bread next to her to come and tell me that she wanted a peanut butter sandwich. There is something so cute, funny and sad about seeing a child who is big enough to go into the pantry, get a loaf of bread and ask for a sandwich, all while crawling on her hands and knees. :(
On a more positive note, she has made huge progress in the past week in her "super shoes". She's standing pretty steadily on her own and braves a few steps here and there. That alone is encouragement to me that with a little bit of physical therapy and these braces on her legs, she will be up and at it in no time. I'm still waiting for the results from the last batch of bloodwork and genetic testing, but I am prayerful and confident that the results will be good!
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1 comments:
I also have a daughter with hypotonia..I know it takes so much effort for these kids to do something so simple to other kids..I totally took the little things for granted with my oldest.look forward to reading more..
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